I just wanted to let everyone know that we saw Taylor’s doctor here last week and we spoke with them last night. They’ve spoken to Dr. McClain, histio expert in Texas that we went to a couple of weeks ago, and we have our new treatment plan for Taylor. Taylor will be starting chemo again on Monday the 12th. Her doctors here want her to start a chemo called 2cda, Dr. McClain says that in his experience he has not used 2cda much to treat ND LCH because he hasn’t seen results. It has been used as a salvage chemo in other types of Histiocytosis but the question is does 2cda cross the blood brain barrier to treat the neuro degeneration of the brain. The plan right now is two rounds of 2cda (4 days on then 3 weeks off), and then if there is no change go to the ARA-C at a higher dose. Her doctors here feel that we should give her the two rounds of the 2cda because she has not had it before and they want to see if we get any positive results. I have sent an email to the doctor here again this morning questioning the blood brain barrier effect of the 2cda and if they tell me there is a chance that it could help then we will try it.
I am not going to lie, we are not looking forward to this but we have got to stay positive. Taylor is very unhappy about having to restart the chemo again but we have told her that she is going to beat Histio this time. She said the other day that she doesn’t want to do it but she knows she has to so she will but she is not going to be happy about it. Sami is upset that Taylor has to go through this again, she was crying the other night saying that she just doesn’t want to see Taylor sick anymore. We are all praying for that day that Taylor is not sick anymore.
We are also kicking off our Team Taylor Garden of Dreams Holiday Toy Drive ~ if you click on the Fundraiser Page link it will bring you to the flyer and it shows some drop off locations. If you would like to donate a new UNWRAPPED toy just drop it off to me or one of our drop off locations listed on the flyer.